In a major step toward changing public perception of sickle cell anaemia, actor and filmmaker Emmanuel Ikubese has launched Mzigo (The Burden), a film dedicated to raising awareness about the disease and inspiring hope within the sickle cell community.
The film, which stars Daniel Etim Effiong, Seun Ajayi, and Tanzanian actress Elizabeth Michael, was premiered at a private screening in Lekki, Lagos, as part of a broader initiative called the Mzigo Project.
Ikubese said his passion for the project was born from personal loss after his cousin died of sickle cell complications in 2020. “I wanted to create something that breaks the silence, myths, and stigma surrounding sickle cell,” he said.
Speaking at the event, Ikubese explained that Mzigo — which means “burden” in Swahili — portrays the emotional, physical, and social weight carried by people living with the disease and their families.
“The idea is to use storytelling as a tool to change perceptions. This is not just a film; it’s advocacy. We want to inspire understanding and empathy. The burden is not only on the person with sickle cell but also on their entire family system,” he said.
He revealed that the film has screened at international festivals, including the Zanzibar International Film Festival in Tanzania and others in the United States, and has been nominated for an award in Abuja.
Dr. Benson Uzoma, Head of Patient Programs at Novartis Sub-Saharan Africa, described Mzigo as an innovative approach to disease awareness. “We found that one of the biggest gaps for people living with sickle cell is lack of awareness. Media is a powerful way to change that, and this film does it brilliantly,” he said.
Abayomi Ndulami, Communication Officer for the Sickle Cell Advocacy and Management Initiative (SAMI), also praised the film. “We joined this project because it tells real stories. At SAMI, we have members who have lived with sickle cell into their 70s and 80s. The old narrative that people with sickle cell don’t live long is false. People live full, successful lives,” he said.
He added that the NGO works with medical experts and public advocates, providing counselling and education for families managing the condition.
Through Mzigo, Ikubese hopes to spark a new conversation about compassion, awareness, and inclusion for people living with sickle cell disease.